Tuesday, September 7, 2004 8:10 AM CDT

In the last journal entry I (Aidan's mom) wrote that Aidan had had a CT scan for his head but the results hadn't come back yet. Since then we have been to see the neurosurgeon. Aidan's CT was fine! In fact, his ventricles were actually smaller than in the scan from February. That's good news!

Aidan thoroughly enjoyed the Catholic homeschool camping trip up in Northern California in July. He spent most of his time pushing his stroller back and forth on the little wooden bridge that went from the camp site to the parking lot. He got fantastically dusty and so did his little brother Patrick. It took several days afterwards to get them really clean again.

Aidan's liver enzymes are elevated again. The transplant team at UCSF has raised his anti-rejection medicine dose. We are getting labs today so hopefully there will be an improvement. Otherwise he is doing just great. He is showing interest in food and understands that hunger can be alleviated by it, which is new and good for him since often that is a foreign concept to a child with a G Tube. He shouts "Aidan, I need to feed ya!" and gets on the bed so I can hook up his feeding tube and give him a bolus of formula. He drinks a fair amount of it now by mouth, which is another good sign.

Aidan's uncle and aunt, Andrew and Heather Fortuine, were here from Canada this Labor Day weekend and we got to go to Yosemite with them. We all really enjoyed their visit. Aidan enjoyed this too.

More later. I will try to update again around the time of Aidan's transplant anniversary, which is the beginning of October. This will be his 5th anniversary. If you would, please say a prayer or two for the family of the young child who donated his liver and thereby saved Aidan's life. This is a difficult time of year for them I am sure.