Thursday, March 27, 2008

Sunday, January 25, 2004 2:42 PM CST

There is not much going on here. Aidan's schedule is as follows: today they raise the extraventricular device to 15, tomorrow to 20, and Tuesday they try clamping it. Surgery is tentatively scheduled for Wednesday. If he has surgery Wednesday, he could get out Friday or Saturday.

Complete bedrest for a four year old is hard work! Paddy and Aidan are both thoroughly bored with life in the PICU. They will sure be happy to be home with their family again, and their siblings will be happy to see them.

Grandma Ryan is staying with the other children today and tomorrow, and tomorrow will bring them down to Fresno with her. Grandma Fortuine has returned to Alaska.

More later, this is a boring update but things will probably go at a faster pace starting around Tuesday or Wednesday.

Willa (Aidan and Paddy's mom, also mom to five older kids at home at Shaver Lake)

Thursday, January 22, 2004 9:00 PM CST

Not too much going on today. I (Willa) got back to UCSF late last night. Aidan still has the shunt draining from his back, much less blood in the CSF fluid today. He is tentatively scheduled for surgery next Wednesday, which seems like a long time away. He is in good spirits. The childlife specialist brought him new toys to play with. He loves to talk to (or rather, listen to) his siblings on the phone.

The doctors have cut back his labs to every other day because now his electrolytes are stable. This makes his life much easier.

More later! Happy birthday Sean!

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