A quick update. It is a weekend, so things are slow here at the UCSF PICU. Nothing much will happen until Monday or Tuesday. This morning the doctors tried clamping off Aidan's shunt to see if he could drain cerebro-spinal fluid (CSF) without it. But his cranial pressure rose quickly, so they went back to weaning him more slowly.
Aidan has been a little cranky today. We are not sure if it is because he feels increased pressure in his head, or if he is simply tired of sitting in a bed 24/7. Maybe both, or neither! We're basically in a holding pattern.
Paddy loves interacting with all the people here at the hospital, but gets a little restless not being able to try out his relatively new walking skills. So we take him out to the hospital courtyard and to the playroom when it is open, to let him work off some energy.
I (Willa) will head back to Shaver Lake tomorrow to see the older kids, while Kevin stays with Aidan. Then on Monday my parents will be flying from Tucson to help out. Aidan probably won't get out of the hospital until Thursday or Friday.
Thanks so much for all the prayers and good wishes! They mean a lot to us!
Willa (Aidan's mom) and Paddy (who is trying to use a Buzz Lightyear action figure to help me type)
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